Rett syndrome is a rare neurological disorder mainly affecting females. We manage two databases that collect information from families and clinicians to better understand the course of Rett syndrome and effectiveness of treatments.
AussieRett was established in 1993 and aims to collect information about all children and adults in Australia with Rett syndrome born since 1976.
View a brochure about AussieRett.
Click here to complete the AussieRett Family Questionnaire 2011.
Support our Rett syndrome research.
Read about an Australian campaign to raise awareness and vital funds for MECP2 duplication syndrome research.
InterRett was established in 2002 and collects information about children and adults with Rett syndrome of any age from around the world.
If you are not already a participant we invite you to Join InterRett.
If you have a login, click here to complete the InterRett Family Questionnaire. The questionnaire is also available in the following languages:
To generate graphs from our InterRett data search our database!
View a brochure about InterRett.